Cancer Care: Program Launches to Help Evaluate Treatment Decisions
May 10, 2012 - 3:48:36 PM
Personalized Program Supported by the Amgen Foundation Designed to Improve Doctor-Patient Dialogue
(HealthNewsDigest.com) - Washington, D.C. and THOUSAND OAKS, Calif. — The Cancer Support Community (CSC) and the Amgen Foundation, today announced the launch of Open to Options™, a program designed to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions. Following a successful pilot funded by the Centers for Disease Control (CDC), the Open to Options program is ready to provide professional counselors who help more people formulate a list of personalized questions and concerns to be taken into the oncologist’s office.
“The number and complexity of options for treating cancer can be overwhelming for people,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC. “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
The Open to Options program is available through its Cancer Support Helpline at (888) 793-9355, through select affiliate locations and by visiting http://www.cancersupportcommunity.org/open2options. The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes.
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation. “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
The program was created in response to CSC research that found the majority of cancer patients are unprepared to make treatment decisions. A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions. The study also showed:
•A decrease in anxiety about the appointment for most patients
•Repeat use of the tools and techniques learned
•Patient and physician satisfaction
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot. “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
About the Cancer Support Community:
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. For more information, visit www.CancerSupportCommunity.org.
In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The combined organization provides high-quality psychological and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online.
About the Amgen Foundation:
The Amgen Foundation (www.amgen.com/citizenship/overview.html) seeks to advance science education; improve patient access to quality care; and strengthen the communities where Amgen staff members live and work. Since 1991, the Foundation has made nearly $180 million in grants to nonprofit organizations throughout the United States, Puerto Rico and Europe that impact society in inspiring and innovative ways, and those that provide disaster relief efforts both domestically and internationally. The Amgen Foundation can be followed on twitter at www.twitter.com/AmgenFoundation.
About Linda House, RN, BSN, MSM:
Linda House, RN, BSN, MSM is the Executive Vice President of External Affairs at the Cancer Support Community, overseeing communications, development and policy efforts. Prior to joining the CSC, she served as Executive Director of St. Vincent Cancer Care in Indianapolis where she has led a team to deliver care across the cancer continuum including screening, genetic counseling, cancer clinical trials, navigation and all modalities of therapy.
Prior to her role at St. Vincent, Linda served as Senior Advisor of Advocacy and Professional Relations for the Lilly Oncology Business Unit where she led the global strategy and outreach efforts for consumer organizations and professional society engagement. Linda received her initial nursing degree in 1984 from the University of Indianapolis. In 2005, Linda received her master’s degree in management from Wesleyan University, where she completed her course work relative to the cancer non-profit marketplace and graduated with honors.
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